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One Goal
Posted by: CysticFibrosisUSA
Video duration: 279 seconds
The Cystic Fibrosis Foundation has one goal: the cure and control for cystic fibrosis.
Related: cf, cure, cystic, disease, doctor, donation, fibrosis, foundation, goal, hope, kid, lung, nonprofits, outreach, research, support
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Cystic Fibrosis Foundation: "We Are Commitment"
Posted by: CysticFibrosisUSA
Video duration: 325 seconds
The Cystic Fibrosis Foundation is powered by the work of dedicated volunteers. Through their fundraising, CF patients are enjoying longer, healthier lives. But some CF patients are still dying before their time. This video, produced and directed by Dan Sonnett of the Sonnett Media Group, is a call to CF volunteers to strengthen their commitment to fight CF.
Related: care, cf, cff, commitment, cystic, disease, family, fibrosis, foundation, fundraising, patients, volunteers
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Cystic Fibrosis Foundation Video Podcast: Cassalina family
Posted by: CysticFibrosisUSA
Video duration: 174 seconds
The Cystic Fibrosis Foundation video podcasts present the stories of CF patients, families and volunteers. The Cassalina family shares their experience of losing their daughter, Jena, to CF and encourage others to help find a cure for CF patients like their son Eric.
Related: care, cassalina, cff, cystic, disease, families, fibrosis, foundation, patients, podcast, video, volunteer
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Cystic Fibrosis Foundation: Sweat Test
Posted by: CysticFibrosisUSA
Video duration: 225 seconds
The Cystic Fibrosis Foundation created this informational video about the sweat test to inform parents about the procedure.
Related: cf, cystic, fibrosis, foundation, help, medicine, parents, patients, states, sweat, test, united
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Cystic Fibrosis Foundation Video Podcast: Frank Deford
Posted by: CysticFibrosisUSA
Video duration: 203 seconds
The Cystic Fibrosis Foundation video podcasts present the stories of CF patients, families and volunteers. Frank Deford, sports commenter, noted author of "Alex: The Life of a Child" and CFF Chairman Emeritus, recalls how he came to realize his daughter Alex, who died of CF at age 8, was a true hero.
Related: alex, books, care, cf, cff, cystic, deford, disease, fibrosis, foundation, frank, gloria, heros, podcast, steinem, video
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Cystic Fibrosis Foundation: "Funding A Pipeline of Promise"
Posted by: CysticFibrosisUSA
Video duration: 495 seconds
The Cystic Fibrosis Foundation strives to advance the search for a cure for CF by funding promising scientific research at medical centers and biotech companies nationwide. Frank Deford narrates this look at the Cystic Fibrosis Foundation's innovative approach to moving new treatments for CF into a pipeline that promises a better quality of life for all CF patients.
Related: care, cf, cff, commitment, cystic, deford, disease, drugs, fibrosis, foundation, frank, fundraising, patients
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Tackling CF with Boomer Esiason
Posted by: CysticFibrosisUSA
Video duration: 105 seconds
Former NFL player Boomer Esiason talks about the importance of participating in clinical trials to advance the search for a cure and control of cystic fibrosis.
Related: boomer, cf, clinical, cystic, doctor, drug, esiason, fibrosis, football, gunnar, health, lung, medical, message, psa, treatment, trial
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Vertex Update: Bob Beall and Frank Accurso talk
Posted by: CysticFibrosisUSA
Video duration: 438 seconds
President & CEO of the CF Foundation, Bob Beall discusses Vertex news with Dr. Frank Accurso at the 22nd Annual NACFC.
Related: children, cystic, doctors, drugs, fibrosis, foundation, lungs, news, treatments, vertex, vx-770
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Congressman Stearns' Remarks on CF Awareness Resolution
Posted by: CysticFibrosisUSA
Video duration: 314 seconds
Congressman Cliff Stearns (R-FL), co-chair of the Congressional Cystic Fibrosis Caucus, speaks as the US House of Representatives supports cystic fibrosis awareness.
Related: 2008, awareness, cff, child, congress, cystic, disease, fibrosis, foundation, government, health, july, lung, stearns, support
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Cystic Fibrosis Foundation: GREAT STRIDES 2005
Posted by: CysticFibrosisUSA
Video duration: 290 seconds
The Cystic Fibrosis Foundation depends on the efforts of dedicated volunteers to help raise funds for the search for a cure for CF. Since the first GREAT STRIDES walk in 1989, more than $180 million has been raised to support the vital research and care programs of the Cystic Fibrosis Foundation. To find out how you can participate, visit http://www.cff.org/g reat_strides.
Related: cf, cure, cystic, fibrosis, foundation, fundraising, great, strides, walk
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Congressman Markey's Remarks on CF Awareness Resolution
Posted by: CysticFibrosisUSA
Video duration: 187 seconds
Congressman Ed Markey (D-MA), co-chair of the Congressional Cystic Fibrosis Caucus, speaks as the US House of Representatives supports cystic fibrosis awareness.
Related: awareness, caucus, cf, child, congress, cystic, disease, fibrosis, foundation, government, health, lung, markey, nonprofit, support
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Pres. & CEO comments on Forbes CF feature
Posted by: CysticFibrosisUSA
Video duration: 136 seconds
Bob Beall comments on Forbes CF feature: Patient Power.
Related: cf, cff, cystic, development, drug, emily, fibrosis, forbes, foundation, lung, magazine, nonprofit, patient, pharma, power, schaller
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NASCAR driver Denny Hamlin races on behalf of CF!
Posted by: CysticFibrosisUSA
Video duration: 76 seconds
NASCAR driver Denny Hamlin races on behalf of cystic fibrosis.
Related: busch, car, cure, cystic, denny, fedex, fibrosis, gibbs, hamlin, joe, kyle, motor, nascar, nonprofit, race, speedway, sport, toyota, win
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Cystic Fibrosis Foundation Video Podcast: Caryn Silliman
Posted by: CysticFibrosisUSA
Video duration: 149 seconds
The Cystic Fibrosis Foundation video podcasts present the stories of CF patients, families and volunteers. CF patient Caryn Silliman talks about the challenges of managing her illness as an adult and her plans for the future.
Related: care, caryn, cf, cure, cystic, fibrosis, foundation, patient, silliman, teenager
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